UK patients to receive Hemgenix after reimbursement agreement

27 June 2024

The UK’s health technology assessor has changed its tune regarding CSL Behring’s Hemgenix (etranacogene dezaparvovec), recommending the product for use in England and Wales.

While the National Institute for Health and Care Excellence (NICE) last year decided not to reimburse Hemgenix, which has a list price of around $3.5 million in the USA, a commercial agreement has now been reached.

Despite the high price, the medicine can be argued to be a cost-effective option, given that ongoing treatment with Factor IX costs significantly more over the lifetime of a patient.

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