The controllers of the purse strings for the National Health Service (NHS) for England made a statement on Wednesday that they are unwilling to continue to pay for patients to access innovative treatments for rare diseases to the extent that they do now.
This came with the announcement of the proposals from cost-effectiveness watchdog National Institute for Health and Clinical Excellence (NICE) and NHS England for a dynamic upper-limit for costs per quality adjusted life year (QALY) above which they will not recommend funding for highly specialized technologies (HST) treatments.
"This decision will have a great impact on many patients, from people with heart disease and diabetes to those with cancer, who are in great need of new treatments"
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