New Zealand to fund PKU drug Kuvan

1 October 2018

New Zealand’s Pharmaceutical Management Agency PHARMAC has announced a decision to list sapropterin (trade name Kuvan), a treatment for the rare condition phenylketonuria (PKU), for women who are pregnant or actively planning a pregnancy and require pharmacological support to manage PKU in pregnancy.

Sapropterin will be funded from November 1, 2018, through an agreement with the New Zealand subsidiary of USA-based BioMarin Pharmaceuticals (Nasdaq: BMRN).

Sapropterin will be listed in Section B and Part II of Section H of the Pharmaceutical Schedule from November 1, 2018 at the price and subsidy (ex-manufacturer, excluding GST) NZ$1,452.70 ($968) for a 30 tablet pack of 100mg sapropterin. A confidential rebate will apply to Kuvan that will reduce its net price to the funder.

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