Greater education and support for non-specialist health care professionals is needed to ensure the accurate diagnosis of autosomal dominant polycystic kidney disease (ADPKD), a chronic, progressive, inherited disease in which fluid-filled cysts grow in the kidneys and liver, according to a new report released today.
The European ADPKD Forum (EAF), an international, multidisciplinary panel of experts from the fields of nephrology, hepatology and genetics, has produced the report titled, Translating Science into Policy to Improve ADPKD Care in Europe. It details the role of health care professionals to improve the development and delivery of ADPKD care, and provides an overview of the current management of ADPKD throughout Europe.
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