NHS England is 'failing rare disease patients,' charity says
Changes in the way that NHS England commissions specialized treatments have been called for by a charity working to improve the lives of patients and families affected by genetic conditions.
On Sunday NHS England announced its decision to routinely commission 10 new such treatments, part of the process for the 2016-17 financial year, and Genetic Alliance UK has stressed that, regardless of legal challenge that has been brought in the intervening time, this decision should have taken place before April of this year.
"We are extremely concerned about the delays in getting to this point and the lack of transparency"
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