Clinuvel's rare disease therapy suffers reimbursement setback in UK
The UK’s health technology assessor NICE - the National Institute for Health and Care Excellence - has provided a draft recommendation against granting reimbursement for Scenesse (afamelanotide) for treating the rare disease erythropoietic protoporphyria (EPP).
Scenesse, which was approved by the European Medicindes agency and the US Food and Drug Administration in late 2014, is used to combat hypersensitivity of the skin to sunlight and some types of artificial light, caused by EPP.
The drug is marketed by Australian firm Clinuvel Pharmaceuticals (ASX: CUV).
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